Thursday, April 19, 2007

There were some questions in the comments from yesterday, so I'll try to explain what's going on with the respirator.

Emily isn't on the respirator because of her lungs. So weaning her from the respirator isn't a function of getting her lungs stronger, it's a function of getting her and her brain comfortable breathing on her own again. When we first started the process of weaning her from the respirator, the therapists and nurses were trying a more "traditional" approach. Emily would get agitated - her heart rate would go way up and she'd start breathing too fast (kind of like hyperventilating). Sometimes she even needed a little sedation to calm down.

Yesterday we started on a new, much more gradual approach. The respirator is still on but instead of helping her breath she does the breathing and it gives her a little pulse of air periodically to help clean the CO2 from her lungs. In total she was on this new wean regimen for 9-1/2 hours yesterday and she went from pressure support of 15 down to 11. Slow, but steady, progress.

I met with one of the hospital's speech therapists yesterday and she walked me through the levels Emily is likely to go through in "waking up." Right now she's at a Level III - she responds to some, although not all, vocal instructions. She tends to respond to my voice better than the hospital staff, which isn't unusual, and she's refusing to stick out her tongue, which I personally believe is because she thinks it's a stupid thing for a total stranger to ask her to do. What we really need to work on now is getting her to communicate to us on simple things - like nodding her head if she can hear me.

Please feel free to include questions in your posts, and we'll try our best to answer them.

6 comments:

Laura said...

Dear Barb and Ken:

Thank you so much for writing these blogs and keeping us all updated on Emily. She is never to far from my mind. I know she is going to get well and I can't wait for the day when I can give her a big hug.

I know the whole Good Shepherd group is sending their positive energies and love your way.

Laura

Brendan Craine said...

I like to hear that emphasis on progress- Sounds like it's going well.

Anonymous said...

WOW! That's great news! Each day brings new wonders and encouragement! Thanks so much for all of the time you spend on the blog to keep us informend.GO EMILY!

melinda said...

Barbara, Emily & family,

I so appreciate this blog; like many others I read it every day. And the detailed descriptions (like looking at wires through her lashes) are awesome. Once the time comes, as it certainly will and we all hope soon, that Emily's out of the ICU, I'll bring a Big Green T shirt.

We're thinking of you every day and cheering every step forward,

Melinda (and Bill and Ben)

Julie Caldwell said...

Emily,

I am so proud of you and your great progess! YOU GO GIRL!

Also, you have the greatest parents and sister in the world. They have not left your side and love you oh so very much....

SO, I send my good wishes and lots of hugs your way knowing that each day is a brighter and "greener" one for you MS EMILY! We miss you!

Julie Caldwell

Ryan said...

We're keeping the good vibes coming your way from DSA.

All the best,
Ryan