Friday, May 4, 2007

According to her neurologist Emily has reached Level IV on the Rancho Los Amigos consciousness scale. At this level she's likely to be very agitated and confused. We saw that clearly throughout the day today. The Physical Therapist warned me that this will be the most difficult phase. Bless her heart - she wasn't there for that first night, or the first 72 hours when we couldn't see much of anything beyond the ICP monitor, or the pneumonia, or the subsequent lung congestion, or that week+ when we weren't sure if the nerve for her right eye would heal. She obviously has a different perspective on "most," but I already love her dearly. She is so knowledgeable and caring and inclusive. It makes this whole ordeal so much more bearable if we actually get to be part of the therapy.

Even more difficult for Ken and me, for the first time since the accident we've seen facial expressions that indicate she's in pain. We think she's having muscle spasms and cramps as a result of the muscle tone and spasticity. There are medications that can relax tone, but they tend to have a sedative effect and since Emily was so significantly affected by sedation in those early weeks, the neurologists have hesitated to give her anything that could act as a sedative. Now that she's in pain, that concerns has to take a back seat.

On the positive side she's doing really well tracking objects and responding to her therapists. The goal for the weekend is to continue her visual tracking exercises, her range-of-motion exercises (which also help with the muscle cramps), and start some tactile stimulation. Hopefully by early next week we can start getting some yes/no responses. Her vent weans continue to go well and hopefully she's on track to be off the vent by the end of next week.

We love you all and can't begin to express our thanks for you love, prayers and support. Please bear with us as we start the vistation part of this process. We know all of you can't wait to see Em and that seeing you will help her. Please just bear with us as we do our best to follow the doctor/therapists instructions for the appropriate level of stimulation.

6 comments:

The VandeRiet Family said...

Barb and Ken:
You and your family never cease to amaze me. You are doing an unbelievable job. Thank you for keeping us all updated as it helps so much. Emily will keep doing better every day!!

Brendan Craine said...

I was going to come and see "Totoro" tomorrow, (sunday) is that still allowed..?

I might add that since the first days were clearly the hardest, then you could approach this from the perspective that everything afterwards will be easier for you all.

Emily's Mom & Dad said...

Brendan,

I know Emily would love to watch "Totoro" with you. I'll make sure she's up in the chair and the dvd player is charged and ready to go.

Another friend made the exact same comment about this being the "most" difficult stage - that means that everything from now on will get a little bit easier. Thanks for helping me keep my perspective.

Brendan Craine said...

That's excellent, but I do not personally own a copy of it, and in fact had to borrow it recently for one of my contracts...

Patricia Dubrava said...

Brendan, I have a video copy. If they have a VCR, I can bring that over this afternoon.

zak said...

You are in our thoughts and prayers. We have ben praying for her at church as well. Thank You so much for keeping us up to date on how she is doing. Keep up the faith. The Feeley Family