Wednesday, May 2, 2007

I'm honestly not sure where to start. We've left the NICU at St. Anthony's - the doctors and nurses there saved Emily's life, stabilized her lungs, and statrted her on her road to recovery. Thank you Drs. Fried and Dennan who got her through that first night and followed up thereafter. Thank you Dr. Lainge for starting every conversation with "I'm so sorry." Thank you Dr. Yarnell for keeping her in ICU until you were comfortable her brain was healing - we look forward to seeing you at Kindred. Thank you Dr. Bost for listening to me and being willing to push Emily and her lungs a little harder. The ICU nurses, I don't know what to say. Aaron, Kori, Seana, Shari, Carol, Sean, Sarah, Chase, Bonnie, both Heathers, and Fergie - thank you. The Respiratory Therapists - Bonnie, Dustin, June, Robert, Cindy, Lance - we know how important you were. I know we've forgotten people, and I apologize, but the message to all is the same - thank you for taking such incredible care of Emily and the rest of us.

Emily is now in Room 422 (they moved her from 427 because now she's closer to the nurse's station and has a better view) at Kindred Hospital, 1920 High Street, Denver. She had a comprehensive therapy - physical, speech and occupational - evaluation this morning. The therapists have put her on a high/low stimulation program. This means that for every 2 hours of therapy and other stimulation she gets 2 hours to rest. It will also ensure that she sleeps at night and is awake and participates in her therapy during the day.

Visiting hours will be from 5-7 Monday thru Friday and 1-3 and 5-7 on Saturday and Sunday. It's very important that we limit visits to these times. We also need to make sure that she doesn't see more than 1-3 people at a time, that visits are limited to 30 minutes (except Brendan when he and Emily watch Totorro), that visitors talk to her (without music, tv, or dvd's) in a clear slow voice, and that folks don't hold side conversations in her room. She needs to be able to tell which conversations she should focus on and try to participate in. I'm sure all of these rules will evolve as her therapy progresses.

For today, Uncle Gary will be with her this evening so that Ken and I can both have dinner with Hannah and celebrate her 11th birthday. Other than today, one of us will be there when you visit. Thanks to everyone for being so patient while Emily was in the ICU and we look forward to seeing you.

2 comments:

Anonymous said...

I start every morning by checking on Emily and her strong family. It is good to see Emily's steady progress; although it must seem heartbreakingly slow to you, from a distance I can see real progress and real hope. I think that Hannah is a silent saint in this family odyssey and I wish her the very best on her special birthday. I know that she has grown much more than one year in the past 365 days, and she is even more special for that. My very best on your birthday, Hannah.

Brendan Craine said...

Excellent! I am glad to hear that she got a room with an inspiring view, and I'm sure one that will spark many a conversation. Thank you for putting up visiting hours, because I can now visit without the hassles of a) feeling awkward about whether or not I can be there and b) feeling awkward because I'm getting special privileges.
Can't wait to watch Totoro with her!